Thanks for reading,
Debra
xo
| Zia, Age 2 |
| Joakim, Age 4 |
| Tyara, Age 9 |
One message that stuck with me was to not define a person by their condition. You should never refer to a person as "an autistic child." Instead, say "a child with autism."
"People before the condition," is what I learned and what I hope to leave with you today.
My niece is a brilliant, beautiful girl, full of joy and energy. She has suffered mild to severe seizures since birth. It's been a few years since her last severe seizure, but doctors believe she continues to have silent ones.
The seizures left her with delays in cognition, coordination, and most of her motor skills. She was formally diagnosed with autism two years ago.
The most heartbreaking piece to our puzzle is not the challenges she faces; she is determined to succeed. It's not the added responsibility to her single mom; my sister is the most hardworking person I know!
The hardest part is dealing with people who don't understand; seeing adults ignore her because they've given up on her, and watching kids exclude her because she is different.
As her family, we can chalk it up to ignorance when we hear people judge her or her mom, but as a nine-year-old girl, sensitive about her self-image, it is beyond damaging.
That's why autism awareness is so important. Education is the key! An informed public can make a difference. I invite you to get to know a family with a child who has autism. Your life will be better by it.
I recently saw this quote in Pinterest and couldn't have said it better myself.
Make a difference! Be informed.
Thanks for reading!
xoxo,
Debra
The first two things I learned upon meeting Rebecca West were she was pregnant with twins, and they were seen holding hands at their last sonogram.
From that moment, I was smitten by them!
Rebecca and her husband, Jason, already had a beautiful little girl and were looking forward to adding two more princesses to their castle.
Tragically, at just 24 weeks, Rebecca had to go in for an emergency c-section. Ellie Grace and Emmie Claire were born on January 14, 2012 weighing 15.2 oz and 1lb 2oz respectively.
Just seven days into their difficult journey, before they were even able to hold her, the West family had to say goodbye to their precious little Ellie Grace due to a severe infection.

Thankfully, the West family is not alone. As part of a larger community of faithful friends and believers, The Wests are covered with prayers. Even my 4 year old recently told me his class at school prays for baby Emmie "every day, Mommy, EVERY day!"

The West family is witnessing miracles every single day and is beaming with hope. I have personally been so touched seeing them, each Sunday, mustering up the strength to come to church and worship through their grief with beautiful smiles on their faces and with more love than you can imagine.

I'm in awe of how this family has resisted the understandable desire to succumb to grief and has chosen instead to be thankful and joyful in the midst of this trial.


All they ask is for as many faith-filled people as possible to stand with them in prayer, believing Psalm 118:17 - Emmie Claire will not die, but LIVE, to proclaim the works of the Lord!
Please take a moment to follow this miraculous family's journey at www.caringbridge.com/visit/ellieandemmiewest
If you would like to become involved, please visit www.marchforbabies.org/djasonwest to find out how you can help.